July 2 , 2009 Medical Homes@Work Issue #152
An E-newsletter dedicated to providing medical home info and resources for children with special needs
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Announcements

1. Building Your Medical Home Toolkit Available Now!

2. Medical Home State Page Highlight: Illinois

3. Announcing 10 New 2009 Healthy Tomorrows Grantees

4. Six States Selected for the State Implementation Grants for Systems of Services for Children and Youth with Special Healthcare Needs (CYSHCN)

5. New Epilepsy Foundation Parent's Web site Released from The Epilepsy Foundation

Publications

6. Article Explores how Improved Chronic Condition Outcomes Associated with Medical Home Implementation Affect Pediatric Primary Care

7. Article Reports Extent to which CSHCN Have Access to a Medical Home

8. Issue Brief Examines Family Perceptions of Mental Health Needs among Children with Special Health Care Needs (CSHCN)

9. Maternal and Child Health Library (MCH) Creates Portal to Resources on the Electronic Exchange of Health Information

10. Report Presents Interdisciplinary Perspective on U.S. Health Care System, from the National Academies of Practice

11. New National Academy for State Health Policy (NASHP) Reports on Medical Home

Webinars/Conferences

12. The 4th International Institute for Family-Centered Care Conference(IFFCC), August 27-30, 2009 in Philadelphia, PA

13. 2009 Annual Urban Maternal and Child Health (MCH) Leadership Conference, August 22-25, 2009 in New Orleans, Louisiana


Building Your Medical Home Toolkit Available Now !

www.pediatricmedhome.org

Brought to you by the American Academy of Pediatrics (AAP)/ Maternal and Child Health Bureau (MCHB)National Center for Medical Home Implementation, the Building Your Medical Home Toolkit is a new (and free!) resource that supports the primary care pediatrician's development and improvement of a pediatric Medical Home.  It also prepares a pediatric office to apply for and potentially meet the National Committee for Quality Assurance (NCQA) Physician Practice Connections Patient Centered Medical Home (PPC-PCMH) Recognition program requirements.  This Toolkit can help a practice assess and improve its medical home capacity with resources and downloadable tools organized into six building blocks that provide guidance for implementation:

  • Care Partnership Support addresses family access and communication
  • Clinical Care Organization addresses standards for practice organization and use of clinical information
  • Care Delivery Management addresses the promotion of clinical care that is consistent with scientific evidence, as well as patient and family preference
  • Resources and Linkages addresses successfully linking patient and families with community resources to help meet their needs
  • Practice Performance Measurement addresses the organization and promotion of safe and high quality care
  • Payment and Finance addresses the need to match quality care and NCQA recognition with payment and value

The National Center for Medical Home Implementation is a cooperative agreement between the Maternal and Child Health Bureau/HRSA and the American Academy of Pediatrics.  The National Center works to ensure that all children and youth, including those with special health care needs, have the services and support necessary for full community inclusion through medical homes.

For more information, please visit www.medicalhomeinfo.org or contact Angela Tobin, Manager of Technical Assistance, at atobin@aap.org.


 

Medical Home State Page Highlight:  Illinois

As a new feature to the Medical Homes @ Work e-newsletter, The National Center for Medical Home Implementation would like to highlight a particular state and its medical home initiatives/resources.  This month's highlight is on Illinois.  Visit the Illinois State Page at:http://www.medicalhomeinfo.org/states/state/illinois.html to learn more about their efforts in advancing medical home.

For example, the medical home leaders in Illinois recently added the following highlights to their State Page:

  • A New Program on Building Community-Based Systems from the Illinois Chapter of the American Academy of Pediatrics (ICAAP)
  • The ICAAP Awarded a State Implementation Grant for Integrated Community Systems for Children with Special Health Care Needs
  • Illinois Medical Home Project (IMHP) Newsletter March 2009 now posted

The National Center for Medical Home Implementation Web site is the premier resource for improving the lives of all children and youth, including CYSHCN, and their families through a medical home.  The information on this site is for all practices, families, states, and communities that want to advance the medical home. To view your state page, please visit:  http://www.medicalhomeinfo.org/states/index.html.

If you have medical home-related information or resources to update onto your 'State Page', please contact Amy Kephart, MPH, Program Coordinator of Technical Assistance, at akephart@aap.org or (847) 434-4902.

The National Center for Medical Home Implementation is funded by a cooperative agreement with the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.

 

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Announcing 10 New 2009 Healthy Tomorrows Grantees

On March 1, 2009, ten new 2009 Healthy Tomorrows grants were awarded by the federal Maternal and Child Health Bureau. These projects will receive up to $50,000 in funding per year for five years to implement child health initiatives in their communities. These projects focus on various topics, such as medical home, mental health, and immigrant health.

·         The Bronx Nutrition and Fitness Initiative for Teens (B'N Fit) Family-Centered Retention Initiative in Bronx, NY
·         Community-Based Care Coordination for Children with Complex Chronic Conditions in Winston-Salem, NC
·         Healthy Futures: A School-based Mental Health Model in Chicago, IL
·         Hospital to Medical Home Project in Toledo, OH 
·         Improving School Readiness in Washington State through Reach Out and Read in Seattle, WA
·         Medical Home/Care Coordination for High-risk Infants: Baby Steps for Health in Philadelphia, PA 
·         Mental Health Services for Children in Public Housing in Los Angeles, CA
·         MnCHIP: Investing in Health and Early Learning for New Americans in St Paul, MN
·         Vista Community Clinic Healthy Tomorrows (VCC HT) Project in Vista, CA 
·         Visiting Nurse Association's Love & Learn Teen Inter-disciplinary Home Visitation in Omaha, Nebraska 

To view full project descriptions, visit www.aap.org/commpeds/htpcp/index.html. The Healthy Tomorrows program currently supports 46 projects in 27 states plus Puerto Rico. To find out about other Healthy Tomorrows projects by topic, search the Grant/Project Database at www.aap.org/commpeds/grantsdatabase/grantsdb.cfm. If you would like additional information about these new projects or about Healthy Tomorrows, do not hesitate to contact Nita Patel at npatel@aap.org or 847/434-7082 or Karla Palmer at kpalmer@aap.org or 847/434-4279.

 

Six States Selected for the State Implementation Grants for Integrated Community Systems for Children and Youth with Special Healthcare Needs (CYSHCN)

Six states were recently selected as recipients for the State Implementation Grants for Integrated Community Systems of Services for CYSHCN. This is a three year state implementation grant beginning June 1, 2009 through May 31, 2012 and is funded by the Department of Health and Human Services (DHHS), Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB).  The states selected were:

  • Illinois: Illinois Chapter, American Academy of  Pediatrics
  • Indiana: Indiana State Department of Health
  • Mississippi: University of Southern Mississippi
  • New Jersey:  Statewide Parent Advocacy Network of New Jersey
  • Kansas:   Kansas Department of Health and Environment
  • Virginia: Virginia Department of Health

The purpose of the grant is to implement the President’s New Freedom Initiative (NFI) by improving access to a quality, comprehensive, coordinated community-based system of services for CYSHCN and their families that are family-centered and culturally competent.  The initiative supports grants to assist State Title V Children with Special Health Care Needs (CSHCN) programs, family organizations, providers, and other partners to implement the six core outcomes of a system of services based on evidence based practices for CYSHCN.  These six core outcomes are as follows:  1) families partner in decision making and are satisfied with the services they receive; 2) CYSHCN receive coordinated ongoing comprehensive care within a medical home; 3) families of CYSHCN have adequate private and/or public insurance to pay for the services they need; 4) children are screened early and continuously for special health care needs; 5) community-based service systems are organized so families can use them easily; and  6) youth with special health care needs receive the services necessary to make transitions to adult life, including adult health care, work, and independence.

 

 

New Epilepsy Foundation Parent's Web site Released from The Epilepsy Foundation

New web site from the Epilepsy Foundation is designed for parents with input from parents. This comprehensive web site contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections. Visit the web site at: http://www.epilepsyandmychild.org/. For more information on epilepsy visit:http://www.epilepsyfoundation.org/projectaccess/


Article Explores how Improved Chronic Condition Outcomes Associated with Medical Home Implementation Affect Pediatric Primary Care

Published online June 29, 2009
PEDIATRICS Vol. 124 No. 1 July 2009, pp. 358-364 (doi:10.1542/10.1542/peds.2008-2600)

Improved Outcomes Associated With Medical Home Implementation in Pediatric Primary Care

W. Carl Cooley, MDa,b, Jeanne W. McAllister, BSN, MS, MHAa, Kathleen Sherrieb, DrPH, MSc,d and Karen Kuhlthau, PhDe,f

a Center for Medical Home Improvement, Crotched Mountain Foundation, Greenfield, New Hampshire; Departments of
b Pediatrics
c Psychiatry, Dartmouth Medical School, Hanover, New Hampshire
d Department of Veterans Affairs, National Center for Posttraumatic Stress Disorder, White River Junction, Vermont
e Center for Child and Adolescent Health Policy, Massachusetts General Hospital for Children, Boston, Massachusetts
f Department of Pediatrics, Harvard Medical School, Boston, Massachusetts

OBJECTIVE: The medical home model with its emphasis on planned care, care coordination, family-centered approaches, and quality provides an attractive concept construct for primary care redesign. Studies of medical home components have shown increased quality and reduced costs, but the medical home model as a whole has not been studied systematically. This study tested the hypothesis that increased medical homeness in primary care practice is associated with decreased utilization of health services and increased patient satisfaction.

METHODS: Forty-three primary care practices were identified through 7 health plans in 5 states. Using the Medical Home Index (MHI), each practice's implementation of medical home concepts "medical homeness" was measured. Health plans provided the previous year's utilization data for children with 6 chronic conditions. The plans identified 42 children in each practice with these chronic conditions and surveyed their families regarding satisfaction with care and burden of illness.

RESULTS: Higher MHI scores and higher subdomain scores for organizational capacity, care coordination, and chronic-condition management were associated with significantly fewer hospitalizations. Higher chronic-condition management scores were associated with lower emergency department use. Family survey data yielded no recognizable trends with respect to the medical home measurement.

CONCLUSIONS: Developing an evidence base for the value of the primary care medical home has importance for providers, payers, policy makers, and consumers. Reducing hospitalizations through enhanced primary care provides a potential case for new reimbursement strategies supporting medical home services such as care coordination. Larger-scale studies are needed to further develop/examine these relationships.

Click here to read more.


Key Words: medical home • children with special health care needs • chronic illness • primary care • utilization of health care services • outcomes

Abbreviations: MHI—Medical Home Index • ADHD—attention-deficit/hyperactivity disorder

 

 

Article Reports Extent to which CSHCN Have Access to a Medical Home

"Qualitative aspects of the medical home model . . . remain
problematic for many CSHCN [children with special health care needs],"
state the authors of an article published in the June 2009 issue of
Pediatrics. Over a decade ago, the Health Resources and Services
Administration created a national strategy to increase the number of
CSHCN with medical homes and established a monitoring approach that
uses national survey data to track progress in achieving that goal, or
core outcome. This article presents updated estimates of the number
and proportion of CSHCN with access to a medical home using recently
released 2005-2006 National Survey of Children with Special Health
Care Needs (NS-CSHCN) data.

A total of 40,843 interviews with parents of CSHCN were completed
during 2005-2006. Parents of children without special health care
needs were also surveyed for comparison (N=4,650). The medical home
core outcome was calculated on the basis of the following five
component measures: (1) having a usual source of care, (2) having a
personal doctor or nurse, (3) receiving all needed referrals for
specialty care, (4) receiving help as needed in coordinating
health-related care, and (5) receiving family-centered care. The study
estimated success in achieving the overall medical home core outcome
and its component elements. The study also assessed how success rates
varied according to sociodemographic and health factors and how the
presence of a medical home was associated with health care outcomes
such as unmet health needs and missed days of school.

The authors found that

* Among CSHCN as a whole, 47.1 percent had access to a medical home
(defined as achieving all five components listed above), while much
greater proportions achieved individual components.

* There were substantial differences in success rates for achieving
the medical home core outcome among CSHCN subpopulations; success
rates for the individual components also varied considerably among
subpopulations of CSHCN.

* Race and ethnicity, household language, poverty status, insurance
status, and impact of the condition were all independently related to
success in achieving the medical home core outcome.

* Controlling for confounders, children without a medical home
experienced more than twice the odds of delayed or foregone care,
twice the odds of having unmet health care needs, and four times the
odds of having unmet needs for family support, compared with children
with a medical home.

* Having achieved the medical home core outcome was associated with a
modest but statistically significant decrease in the likelihood of
missing 10 or more days of school.

"Overall, the 2005-2006 NS-CSHCN indicates that we have not yet
achieved the National Healthy People 2010 objective to ensure that all
CSHCN have access to comprehensive health care consistent with the
standard of a medical home," conclude the authors. "As the medical
home model moves from a concept to an implemented quality health care
strategy," the authors suggest, "improved strategies for reaching all
children must be developed and implemented effectively at the federal,
state, and community levels."

Strickland BB, Singh GK, Kogan MD, et al. 2009. Access to the medical
home: New findings from the 2005-2006 National Survey Of Children with
Special Health Care Needs. Pediatrics 123(6):e996-e1004. Abstract
available at http://pediatrics.aappublications.org/cgi/content/abstract/123/6/e996.

Readers: More information is available from the following MCH Library resource:

- Children and Adolescents with Special Health Care Needs: Knowledge Path at
http://mchlibrary.info/KnowledgePaths/kp_CSHCN.html



 

Issue Brief Examines Family Perceptions of Mental Health Needs among Children with Special Health Care Needs (CSHCN)

Mental Health Needs of Low-Income Children with Special Health Care
Needs (CSCHN) summarizes a study that compared the prevalence of
mental health problems among CSHCN to family perceptions of mental
health needs. The issue brief focuses on what was learned from a Child
Health Insurance Research Initiative (CHIRI) survey of families of
CSHCN enrolled in Medicaid receiving services in six primary health
care clinics in an urban Midwestern city. Family perceptions of their
child's mental health needs were compared with the results of the
Child Behavior Checklist, a standardized tool that uses parent report
to assess emotional, behavioral, and social problems in children. Data
on the percentage of health and mental health problems in CSCHN in
Medicaid and family perception and need for mental health treatment by
age are provided. Policy implications are also discussed. The brief is
available at http://www.ahrq.gov/chiri/chiribrf9/chiribrf9.pdf.

 

 

Maternal and Child Health Library (MCH) Creates Portal to Resources on the Electronic Exchange of Health Information

Health Information Technology (Health IT) Resource Brief is an
electronic guide to current resources on the use of computer hardware
and software to store, retrieve, and share health-related information,
data, and knowledge for communication and decision-making purposes.
The brief, produced by the Maternal and Child Health (MCH) Library at
Georgetown University, lists and describes federal agency and
professional organization Web sites that focus on health IT or contain
health IT-specific resources. Selected resources include news
headlines; information on projects, programs, and initiatives;
publications; tutorials; guidelines and certification; a glossary;
discussion lists; and presentations. Search tips for accessing
citations, abstracts, and full-text journal articles on MCH-related
health IT are also included. The brief is available at
http://mchlibrary.info/guides/healthinfotech.html.

MCH Library resource briefs on other topics are available at
http://mchlibrary.info/products.html#select. The MCH Library welcomes
feedback on the usefulness and value of the resource briefs. A
feedback form is available at
http://www.mchlibrary.info/feedback/index.html.

 

 

Report Presents Interdisciplinary Perspective on U.S. Health Care System, from the National Academies of Practice

Models of Accountable, Coordinated Health Care: A Policy Paper of the
National Academies of Practice presents recommendations on steps to
promote and support a variety of health professionals in providing
care and achieving optimal outcomes across care settings and types of
care and throughout an individual's lifespan. The report, published by
the National Academies of Practice (an interdisciplinary organization
of health professionals representing 10 disciplines), contains
background and conclusions based on a review of the literature;
information about a forum of experts held on March 28, 2009, in
Arlington, VA; and committee deliberations informed by the literature
review and forum proceedings. Topics include the definition of an
accountable, coordinated health care system and the case for its
inclusion in health care reform; models of care (chronic care, medical
home, home-based primary care, community-based care, and other
models); supports needed to enable and enhance models of health care
delivery; prevention and health promotion; and universal coverage. An
executive summary, discussions and recommendations, definitions, and a
reading list are included. The report is available at
http://nap.affiniscape.com/associations/9326/files/2009%20Forum%20Paper%20with%20cover.pdf.

New National Academy for State Health Policy (NASHP) Reports on Medical Home

The Role of Federally Qualified Health Centers in State-led Medical Home Collaboratives
Using telephone interviews with public and private stakeholders in Pennsylvania, Rhode Island and Vermont, this report describes each state’s multi-payer medical home collaboratives and the role that federally qualified health centers (FQHCs) play. We hope this report will be of value for other state policymakers looking to develop similar pilots, as well as describe opportunities for FQHCs, primary care associations and others who want to become engaged in state efforts to advance patient-centered medical homes.
Click here to view the publication.
Click here to listen to the archived webcast

Building Medical Homes in State Medicaid and CHIP Programs

Since 2006 more than 30 states have developed policies to improve Medicaid and Children's Health Insurance Programs (CHIP) to advance medical homes. With support from The Commonwealth Fund, Building Medical Homes in State Medicaid and CHIP Programs summarizes the work in the states and provides state policy makers with examples of promising practices, lessons learned and ideas they can adapt to work in their state.  Eight state Medical Home Summit teams from Colorado, Idaho, Louisiana, Minnesota, New Hampshire, Oklahoma, Oregon, and Washington informed a significant aspect of this paper.

Click here to view the publication.

 

The 4th International Institute for Family-Centered Care Conference(IFFCC), August 27-30, 2009 in Philadelphia, PA

The 4th International Conference will showcase innovative health care programs that are committed to patient- and family-centered care and meaningful collaboration with patients and families. Priority consideration will be given to presentation teams that include health care professionals and patient/family leaders. For more information, visit: the IFFCC web site.

 

2009 Annual Urban Maternal and Child Health (MCH) Leadership Conference, August 22-25, 2009 in New Orleans, Louisiana

Highlights of the 2009 Conference include engaging plenaries focused on evidence, innovation and leadership, interactive skills-building sessions on topics such as mental health, health impact assessment, evidence-based practice and practice-based evidence, our MCH Summit on Committing to the Future, as well as a service-learning experience in the New Orleans community.  

In addition, this year they are featuring three skills-based pre-conference workshops on Saturday, August 22nd. Sign up now for The Message Box: Framing Your Message for Policy Makers, the Do-it-Yourself Series: Performance Measures session, or Growing MCH Leaders: Mentoring and Planning for Success!

Overall, the 2009 CityMatCH Conference holds numerous opportunities to network and learn about best practices in urban MCH; a more complete picture of the conference can be found in the conference brochure and online agenda at www.citymatch.org/conf_index.php